Diabetes affects the whole family, whether you’re a parent, sibling, child, grandchild or spouse. This week on the blog, we’ll be featuring stories about loving and caring for someone with diabetes.
Name: Heather Johnson
Location: Lancaster, Calif.
My daughter Anaya was diagnosed with type 1 diabetes at age three on Dec. 19, 2011. She was in diabetic ketoacidosis (DKA) with a blood glucose reading of 654 mg/dl. She stayed at the children’s hospital for three days and was released the day before Christmas Eve.
Since then our lives have changed tremendously. Anaya is now five and has been on the Medtronic insulin pump since February 2013. Every minute of the day we are worried about her blood glucose getting high or dropping low.
My husband, my mother and my sisters have been a great support system and help with everything to the fullest. My mother helps take care of Anaya when I’m at work because I’m not comfortable with leaving her in daycare. She helps with Anaya’s site changes and carb counting. My husband (Anaya’s stepfather) has also stepped up to help with her glucose testings and her pump. He is learning how to do site changes as well.
This year Anaya is in kindergarten. We are always worrying about how she’s doing at school. Unfortunately, the school won’t issue her a nurse (they only have a health clerk), so my mother and I drive to her school to treat her as needed. I’ve had multiple meetings with the principal to discuss how to improve things. For example, they don’t make sure she eats all her food for what she was bloused, which could cause her to go low.
Just last week we signed a 504 plan with Anaya’s school. So far, they are not really abiding by it. My mother and I still spend a lot of time going to her school to do corrections and boluses. Her life is in the school’s hands, but they don’t take her diabetes as seriously as I feel they should.
Note: The American Diabetes Association believes that every child with diabetes deserves to have their medical needs met at school. Visit our website to learn more about the Safe at School campaign. Parents and guardians may also contact the Association’s Legal Advocates for help with resolving conflicts; call 1-800-DIABETES.