Your Rights, One Voice: Kevin’s Story

SAS_2016-2-22Sandy of Encinitas, California, needed some help on behalf of her son Kevin, a seventh grader. Kevin, who has type 1 diabetes, had a 504 Plan in elementary school, but it didn’t carry over to his new school. He needed a new 504 Plan to ensure that he would be treated fairly, stay medically safe and have the same access to education as his peers in middle school.

In October 2015, Sandy met with the counselor and a few of Kevin’s teachers at the school. They denied Kevin a 504 Plan because his grades were “too good” and said that a 504 Plan was only needed for students with learning problems. Instead, they set up an individualized health plan (IHP) for Kevin. But Sandy knew that an IHP would not fully protect him.

Why did it matter which plan was set up for Kevin?

An IHP is an agreement that outlines medical care for students with special health care needs. But a 504 Plan includes extra protections for people with disabilities. Diabetes is considered a disability under federal law. 504 Plans also ensure that students with disabilities receive the accommodations that they need at school, as well as equal access to school-related activities like field trips and extracurriculars.

Sandy contacted the American Diabetes Association® for help.

 One of the Association’s Legal Advocates confirmed that Kevin was protected under federal law. He gave Sandy resources to help, including a sample letter that outlined the rights of students with diabetes. Sandy felt that the school’s administrators did not fully understand laws that protect students with diabetes. She used the sample letter, added information about Kevin and sent it to the school principal. If the letter didn’t work, Sandy was prepared to file a complaint with the school district’s superintendent. But the school agreed to meet with her again.

Sandy took some helpful suggestions from the Association’s legal advocate in preparing for this meeting.

 Kevin would be attending this school for two years and then move on to high school within the same district, so she wanted to establish a good relationship with the administrators. To encourage friendly and constructive conversation, Sandy brought coffee and snacks. To help her feel confident, she also took along another parent who had more experience with the issue and understood the laws about school and diabetes.

The result?

 A 504 Plan was set up for Kevin that will cover him through high school. Sandy is glad that she fought for Kevin’s rights and knows that her efforts will also help other students with diabetes down the road.

“A lot of people were helped. Thanks to the American Diabetes Association, the resources they provided and the other parents who encouraged me. The help from the Association’s legal advocacy program was vital, and having that help at no charge was amazing. As a side note, we just sent a small donation to the Association as a thank you.”

The American Diabetes Association leads the effort to prevent and eliminate discrimination against people with diabetes at school, at work and in other parts of daily life. If you need help, call 1-800-DIABETES or visit

Through our nationwide Safe at School program, the Association is dedicated to making sure that all children with diabetes are medically safe at school and have the same educational opportunities as their peers. Visit our Safe at School website for information and resources.

Give the gift of fairness — donate now to help people with diabetes facing discrimination, just like Kevin.

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This entry was posted in About Us, Advocacy, Family, Life with Diabetes, Parents, Safe at School, Talking Type 1, Your Rights, One Voice and tagged , , , , . Bookmark the permalink.

6 Responses to Your Rights, One Voice: Kevin’s Story

  1. Pingback: Your Rights, One Voice: Kevin’s Story | My Diabetes Buddy

  2. Pingback: Your Rights, One Voice: Kevin’s Story | Gregg's Diabetes

  3. Anne Bazinet says:

    We had never heard of a 504 plan, and the school nurse at my son’s elementary school worked with us on it. My son too had excellent grades, and fairly good diabetic control. We did however want it in place for future years. He skipped the 3rd grade due to his academic abilities. He also graduated as Valedictorian of the Class of 2014 from Kenmore West High School in Kenmore, NY. I do not believe he ever had to use the plan other than he was allowed to take his exams, AP exams, and tests in a separate room with other 504 kids, in case there were medical issues The proctors for some of these was sometimes from the health office. He is now finishing his sophomore year at Williams College in Massachusetts, about 5 1/2 hours from home.

  4. Pingback: Your Rights, One Voice: Kevin’s Story | Diabetic Junction

  5. tammy says:

    My son had a 504 since elementary school the principal at the time wrote it up under other health reasons. He really never needed the extra provisions like it would of protected him on the day of a test if his bs were too high or low. He could request to take a different day. He also could have the test orally taken where the teacher would ask him the questions rather than him read the questions. Again he never used this but it was in place. Recently I had heard of another diabetic student in same district denied 504 they had told parents she didn’t qualify. SOUNDS LIKE A LAZY PRINCIPAL TO ME. This a small rural district in wi

  6. Pingback: Sandy of Encinitas, California, needed some help on behalf of her son Kevin, who has type 1 diabetes

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